The Danish Biobank Register
Combining data from all the biobanks participating in the Danish National Biobank initiative, The Danish Biobank Register gives researchers online access to about 24.5 million samples
In this national collaboration large biobanks, based at hospitals, universities and other research institutions in Denmark, regularly submit data to the Danish Biobank Register. Data from the biobanks can be linked to disease codes and demographic information from national administrative registers on an individual level.
Aggregated results about the available biological material is displayed to researchers around the world through a web-based search system, that so far contains information about 24.5 million biological samples from 5.7 million Danes. The following biobanks are available through the Danish Biobank Register:
- Danish National Biobank 1 million new samples a year, PKU cards: blood spots from all newborn Danes since 1982 (>2 million samples) and SSI legacy collections (>4 million samples)
- Danish National Birth Cohort >600,000 samples from pregnant mothers and their children
- Rigshospitalet (Copenhagen Hospital biobank) 50,000 samples collected annually
- Danish Cancer Society project Diet, Cancer and Health (samples from 57,000 cohort participants)
- Patobank 17 million tissue samples from national hospitals
- COPSAC studies involving children with asthma
- DD2 type 2 diabetes research
- The Danish Blood Donor Study research on why blood donors are more healthy than the average population
- Danish Cancer Biobank blood and tissue samples from Danish cancer patients
- Region Zealand biobank contains the Næstved and Lolland Falster population cohorts
- The Danish Twin Registry is the oldest national twin register in the world and has information on 86,000 twin pairs
- OPEN Odense Patient data Explorative Network: research samples from the Region of Southern Denmark
And can be linked to information from:
- The Danish Civil Registration System includes individual information such as gender, date of birth, place of birth, citizenship, identity of parents, place of residence.
- The Danish National Patient Register includes information on all hospital contacts, department, date and time of arrival and departure, treatment, and operation.
- The Danish Pathology Register contains information on all pathological examinations carried out in Denmark, investigating pathology department or practicing pathologist, type of investigation, gross description, microscopy description, conclusion and/or diagnoses, and coded diagnoses based on the Danish SNOMED